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Heterotaxy Connection Board Members
Job Posting: Board Members for Heterotaxy Connection
Organization: Heterotaxy Connection (www.heterotaxy.org)
Mission: To provide support, education, and advocacy for individuals with Heterotaxy and their families, while promoting research and awareness.
Job Summary:
Heterotaxy Connection is an emerging rare disease patient advocacy group seeking two dedicated and passionate individuals to join our Board of Directors. We are looking for a candidate with a financial background and a candidate with a legal background to bring their expertise and skills to our organization.
Responsibilities:
- Attend quarterly Board meetings (in-person or virtual) and participate in committee work as needed
- Provide strategic guidance and oversight to ensure the organization's mission and goals are achieved
- Contribute to the development and implementation of organizational policies and procedures
- Serve as a representative of Heterotaxy Connection, promoting the organization's mission and values
- Collaborate with the Executive Director and other Board members to make informed decisions
- Participate in fundraising efforts and help secure funding for the organization
Requirements:
- Financial Background:
- 3+ years of experience in finance, accounting, or a related field
- Strong understanding of financial management, budgeting, and fundraising
- Ability to analyze financial data and provide strategic guidance
Or
- Legal Background:
- 3+ years of experience in law, non-profit law, or a related field
- Strong understanding of non-profit governance, compliance, and regulations
- Ability to provide legal guidance and support to the organization
Commitment:
- 3-year term, with the possibility of re-election
- Quarterly meetings (in-person or virtual) for approximately 2-3 hours
- Occasional committee work and email correspondence
What We Offer:
- Opportunity to make a meaningful impact on the lives of individuals with Heterotaxy and their families
- Collaborative and supportive Board environment
- Professional development and networking opportunities
- Recognition of your expertise and contributions to the organization
How to Apply:
If you are passionate about our mission and have the skills and experience we are looking for, please submit your application, including:
- A cover letter outlining your interest in the position and how you can contribute to Heterotaxy Connection
- A resume or CV
- Contact information for two professional references
Applications can be submitted to necia@heterotaxy.org. We look forward to hearing from you!
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Additional Info
Organization Mission : At Heterotaxy Connection, our mission is to create a world where individuals and families affected by Heterotaxy find the support, education, and empowerment they need to live their best lives. We are dedicated to making a positive impact in the lives of those touched by this rare congenital condition.
Supporting Families and Individuals: We are committed to providing unwavering support and a nurturing community for families and individuals dealing with Heterotaxy. Our goal is to be a trusted resource, offering emotional and practical support throughout their journey. We believe that no one should face this challenge alone, and we strive to create a strong, compassionate network that fosters understanding, connection, and resilience.
Educating through Medical Conferences with Experts: Heterotaxy Connection is dedicated to promoting awareness and understanding of Heterotaxy among the medical community and the general public. We organize and participate in medical conferences, bringing together world-renowned experts, researchers, and healthcare professionals to share knowledge, advancements, and best practices. By facilitating these educational opportunities, we aim to enhance the quality of care and support available to those affected by Heterotaxy.
Empowering Those with the Condition: We believe that individuals with Heterotaxy can lead fulfilling lives and reach their full potential. Heterotaxy Connection is committed to empowering those with the condition, providing resources and guidance to help them overcome challenges and achieve their goals. Through advocacy, mentorship, and a strong community, we inspire hope and encourage every individual to embrace their unique journey, fostering a sense of pride and confidence.
By uniting families, healthcare professionals, and individuals affected by Heterotaxy, Heterotaxy Connection strives to build a world where every heart with Heterotaxy beats with strength, resilience, and a sense of belonging. Together, we work towards a future where the impact of Heterotaxy is minimized, and where everyone can live their best life.
Volunteer Skills Desired : Finance, Fundraising, Legal
Organization Cause Area : Human Services
Volunteer Opportunity Times of Day Available : Evening
Volunteer Opportunity Days of the Week Available : Thursday