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Volunteer Board Member - APDS Rare Disease Coalition (Remote)
Volunteer Board Member – APDS Rare Disease Coalition (Remote)
The APDS Rare Disease Coalition is seeking passionate, mission-driven individuals to join our Board of Directors and help make a meaningful difference in the lives of individuals and families affected by Activated PI3K Delta Syndrome (APDS), an ultra-rare primary immunodeficiency.
As a volunteer board member, you will help guide the organization's strategic direction, strengthen programs and partnerships, support fundraising and awareness efforts, and advance our mission to educate, advocate, support, and empower the APDS community.
We welcome individuals with a variety of backgrounds and experiences, including patients, caregivers, healthcare professionals, researchers, nonprofit leaders, business professionals, marketing and communications specialists, fundraising experts, finance professionals, legal professionals, and others who are passionate about improving the lives of those affected by rare diseases.
This is a fully remote, ongoing volunteer opportunity with an expected commitment of approximately 3–5 hours per month, including attendance at one monthly board meeting and participation in organizational initiatives. Together, we are building a stronger future for the APDS community through collaboration, compassion, and advocacy.
If you are looking for an opportunity to use your skills to create lasting impact within the rare disease community, we encourage you to apply.
To apply, email tara@apdscoalition.org
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Additional Info
Organization Mission : At the APDS Rare Disease Coalition, we are dedicated to raising awareness, providing support, and building meaningful connections for individuals and families affected by Activated PI3K Delta Syndrome (APDS). Through education, advocacy, research support, and community engagement, we strive to bring clarity, resources, and hope to families worldwide navigating life with APDS.
Volunteer Skills Desired : Advocacy/Community Outreach, Legal, Finance, Marketing/Communications, Events/Event Coordination, Human Resources, Education/Teaching
Organization Cause Area : Disease, Disorders, and Medical Disciplines